A Little Girl Named América

América Rivera Alcántara, 7, suffers from Crouzon Syndrome, a genetic disorder that prevents the skull from growing normally and affects the shape of the head and face. At risk for blindness and loss of hearing a team of doctors with the Dell Children’s Craniofacial and Reconstructive Plastic Surgery Center performed delicate corrective surgery on América in hopes of restoring those problems and giving her a more normal appearance. América, who is focused on learning the basics of language to be able to read in the near future, received home schooling from AISD in the early months of the 2009 school year. She proudly displays her name created using rubber stamps in a learning exercise with hopes of reuniting with her second grade classmates very soon. After her titanium halo was removed she was able to resume her studies and reunite with her classmates.

Photos by Ralph Barrera/Austin American-Statesman

Read medical writer Mary Ann Roser’s wonderful story

Witness a superb multimedia production by Jenni Jones in this video

And go here for a more extensive photo gallery



One comment on “A Little Girl Named América”

  1. Its so nice to read a blog about a girl with great progress from her genetic disorder with the help of excellent doctors and loving parents such a mother who made a blog about her children who have similar disorder

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